Hi Julie

Sorry to hear things are so tough right now. I, like you, haven't slept through the night in months. It gets very wearing doesn't it? Perhaps we should meet up of a night time to while away some hours!! How about Manchester Piccadilly ... that must be about half way!!! Can you imagine it? A pyjama party on the station! Are you sure it's a lack of Naproxen and not too much climbing?

The job sounds an interesting proposition. Hope it proves to be a promising alternative.
Take care

Lyn xx

Hi Julie

Pleased to hear the reflux has improved a little and continues to do so for you. Its awful to have such disturbed nights and really doesn t help your progress due to feeling tired and washed out. I ve never handled those sorts of nights before I had RA, and certainly suffer when I do now. Good to hear about your change in your job, sounds just what you need really hope that all goes well for you

Take care Julia xx

Cold didn't go - on antibiotics for my chest now. I don't blame this on the Humira - walking into our office for the last 3 weeks has been like walking into a TB ward! About one in three people have succumbed to the office lurgy. No tummy troubles though and have a week off work with Jim and Julian - Yipeeeeee!

Julie

Should have taken next injection today but only finished antibiotics last Wednesday. Supposed to lay off Humira for 2 weeks after Antibiotics but will skip a week and take it next Monday instead I think.

Julie

It was just said by the Anti-tnf nurse Doreen on my first injection day. I can't find anything in the pack I got at first and I've checked the actual drug leaflet and it doesn't say anything in there at all. Think I might leave it just a week as I still feel very chesty. I still haven't phoned them to let them know I've reduced the metho - they always sound like you are really bothering them when you phone so I'll just leave it until my review on 16 Nov. I don't know what I'd do without FB and this forum. Thanks once again Doreen. It must be so awful for people who don't have anyone to share their thoughts and questions with.

Julie xx

Injection number 6 yesterday. I only left it a week and a half to get back into the Monday routine and I felt fine anyway.

I'm still really struggling with my hands and wrists - so painful and can see them getting lumpier and bumpier. It has been waking me up every single night for about 6 months. However, got some Tramadol last week and actually slept for 6 and half hours one night Still woke up a few times last night but GP said I could up the dose to 2 50mg tabs if necessary so am going to try that. (Also have to add that I started my new job this week so a bit nerve racking but seems ok.)

As I mentioned in an earlier post, I do think there is some improvement considering the time of year. I checked back in my blood test book and this time last November I was off work. I could hardly get downstairs and when I did, I was stuck to the sofa all day. The flare didn't break until I had a depo at the end of November. I have been this way at this time of year for a few years. I was actually properly diagnosed in November when I was in a tangle in 2006. I've had twinges in my knees hips and shoulder but I think it must be the Humira keeping things at bay. (I might be being a bit optimitstic but that's how I'm justifying keeping up with it for myself

Feeling ok apart from hands/wrists. Still sticking to the 15mg Metho though. I was due to see Anti-tnf nurse next week and thought I'd tell them then but have had a letter today to say that it's been put off 'til the week after. C'est la vie!

Julie

Hello Julie,

Good to hear from you. Sorry that things are not as good as they perhaps should be.
I am interested in your posts as I am meant to be started Humira very soon (i was told
mid Jan. I will leave it another week and then chase.

I know what you mean b y changing drugs fingers crossed that the humira does better
over next few weeks than it has done.

What job do you do now ? is it less hours ?

Rose

Hope you get over your cold and poorly finger soon Rose and can get started on Humira (I think you made a better choice with Humira as it is only every 2 weeks!)

Do hope you start to feel better again soon Julie and won't have to have the upheaval of changing meds again. Keep posting on your blog if you get time - miss you!

XX Ailsa

Oh Julie,
I was wondering how you were, not good from that. Hopefully you can change drugs and things will improve, trouble is that takes time, sending best wishes that you get some relief soon.
Love
Sheila

Thanks for your messages. I've had another rough few days and am just feeling sorry for myself. The tendon sheath on the back of my left hand is massivley swollen again and it really worries me. My right hip is also joining in the fun on a regular basis now aswell. It doesn't seem worth trying to get an appointment though as I'm seeing the consultant at the end of the month. I am getting frustrated as my new job is brilliant and I just don't want to be off. Migh be ok if I rest at the weekend.

Have you managed to start yours yet Rose?